The Last Time

My husband asked me to go outside and look at the moon with him last night. Our oldest son got a telescope for Christmas last year and we like to set it up in the front yard and look up at the sky at night. Most nights when we have finished the bedtime rush with…

A Picture’s Worth

“Where is Gus?” Jack asked when he got in the car after school this week. “He’s home with your dad. Ellie and I just finished at her doctor’s appointment, and I didn’t have time to go get him before it was time to pick you up from school,” I said. He looked over the edge…

Forget to Forgive

I certainly don’t find myself in 2022 with answers, but my focus is shifting. Instead of being mad that no one has sent the lifeboat to save me, I realize that the real question is more about how I ended up in that deep of water by myself in the first place.

Pulling it all together

I pulled my life together enough to mail Christmas cards this year. A Black Friday deal in my email inbox caught me at just the right moment, and I was able to make it happen for the first time in my whole life. I forced the kids to get dressed for a picture – what…

Minimizing Risk

This week, the cardiologist recommended that we all hunker in again, including keeping the kids home from school. With our daughter Ellie’s track record – three hospitalizations for pneumonia this summer alone – he thinks that the odds are not in her favor if she catches any respiratory virus and that she would likely need…

Three Little Birds

About 15 years ago, one of my friends went to Jamaica. I don’t still have a lot of relics from that time in my life, but I do have the Bob Marley coffee mug he brought back to me as a souvenir. One side of it has a gold-plated lion, and the other side is…

Matters of the Heart

February is celebrated as American Heart Month in an effort to raise awareness about heart health and the prevention of heart disease. Kids with special needs are often at an increased risk of heart conditions. Down (Trisomy 21), DiGeorge (22q11.2 deletion), Turner (Monosomy X), Patau (Trisomy 13), Edwards (Trisomy 18), Alagille and other syndromes carry…

The Beat Goes On: An Update

This morning I sat in my daughter’s cardiologist’s office while he talked to me about what was wrong with her heart. My husband Ben joined us via Facetime and I held Ellie, who just wanted to hug. We were chest to chest, and I could feel her heart beating while the doctor pointed to the…