World Down Syndrome Day 3.21.22

The way you are different might be the difference that makes the world a better place. #worlddownsyndromeday #inclusionmatters #rockyoursocks #homieswithextrachromies#downsyndrome #ardownsyndrome

Cool like Elwie

I took Ellie to the eye doctor last week. Well, Ellie and Gus. They both got to go because the ice in Arkansas closed their schools. My husband was in court, so I loaded up my two emotionally unstable Tasmanian devils who only want to “do it myself, Mama” and off we went to terrorize…

But do you really hear me?

I went to Target this week in search of a shirt that I bought there at least three years ago. A mustardy, harvest-goldish colored short-sleeved t-shirt from the toddler section that has black bug outlines on it.

Trash and Treasure

Eventually, the little clay pot broke when the new baby, Gus, pushed it over, but I was able to save the one piece with the blue paint on it.

Surviving Sleep

I didn’t have kids at this point. I don’t even think I was in a serious relationship. Since that day, though, this conversation stuck in my mind and even haunted me, because as a naïve single woman, I could not imagine the horror of not getting my comfortable, uninterrupted 8 hours of sleep each night.

Hand Pile

I remember spending time with only one of my grandparents. My mother’s mother. I remember what her house smelled like. I remember riding in her car with the windows down. I remember how cool the linoleum tile floor in her kitchen was that time she and I were under her long wooden table trying to…

Pulling it all together

I pulled my life together enough to mail Christmas cards this year. A Black Friday deal in my email inbox caught me at just the right moment, and I was able to make it happen for the first time in my whole life. I forced the kids to get dressed for a picture – what…

Balance

Our dishwasher died the week of Thanksgiving. I knew it was sick; it had been for a long time. After some surgery and nursing, I was able to use the machine to clean the last of the dishes from our big dinner, but on Black Friday, it finally gave up the ghost. My husband, Ben,…

Minimizing Risk

This week, the cardiologist recommended that we all hunker in again, including keeping the kids home from school. With our daughter Ellie’s track record – three hospitalizations for pneumonia this summer alone – he thinks that the odds are not in her favor if she catches any respiratory virus and that she would likely need…