Matters of the Heart

February is celebrated as American Heart Month in an effort to raise awareness about heart health and the prevention of heart disease. Kids with special needs are often at an increased risk of heart conditions. Down (Trisomy 21), DiGeorge (22q11.2 deletion), Turner (Monosomy X), Patau (Trisomy 13), Edwards (Trisomy 18), Alagille and other syndromes carry…

But what if the best thing happens?

That question that night gave us the opportunity to dream about what life could be like.

Donate Life

Before our daughter was born, my husband and I met with Arkansas Regional Organ Recovery Agency (ARORA) about organ donation. In utero, she was diagnosed with two critical heart defects and Down syndrome. We were told to expect the worst and hope for the best when she was born and to also understand the risks…